First week of genetic counseling graduate school vlog! I’m so excited to share this journey with you as I complete my two-year master’s program in genetic counseling at the Icahn School of Medicine at Mount Sinai!
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☞ My Ehlers-Danlos Syndrome Story: https://www.youtube.com/watch?v=zYt9jAO0WyQ
☞ What to do if you think you have EDS? https://www.youtube.com/watch?v=zGJ1Ftpbvqk&t=347s
☞ The types of pain EDS causes me: https://www.youtube.com/watch?v=VkixrpRbTn0
☞ Differences between EDS, HSD, Hypermobility: https://www.youtube.com/watch?v=nTAffLj-2cI
☞ How to get a doctor to listen to you: https://www.youtube.com/watch?v=km17oL6i94s
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes are a group of more than 13 genetic connective tissue disorders that make connective tissue abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as others. The most common symptoms and co-morbidities include chronic joint pain, dysautonomia, dislocations, GI tract dysmotility, and severe joint instability, among many others. The most common type (and the type that I have) is hypermobile EDS (formerly known as Type III), which is estimated to affect around 1 in every 5,000 people. However, it’s speculated by many to not be as rare as we once believed.
MORE INFO ABOUT EDS:
MORE INFO ABOUT POTS:
MORE INFO ABOUT GASTROPARESIS:
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
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